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Renee' and Natalie will be running the Walt Disney World Wine & Dine 1/2 Marathon on November 10, 2012 to complete the Coast to Coast Challenge, and to raise funds for BBAF. Renee' will also match to the total donations raised in a personal donation to the American Cancer Society. Donations can be made via paypal here, or by mailing a check via regular mail to the foundation address. We're hoping to make this fundraiser as successful as the last. Your support is appreciated! All donations are tax deductible.
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"As many of you have heard, our family went through a horrifying experience early on in the life of our beautiful daughter, Bailey.
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Within days of her birth, Bailey tested “positive” for a metabolic disorder known as “G-A 1”. For the first ten weeks of her life, we lived a nightmare founded in overwhelming love that we felt for this gorgeous little Angel who had graced our life, combined with a level of fear, grief, and pain that we had never before experienced in our lives.
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As it turned out, our prayer for a miracle was answered as Bailey’s final round of tests came back showing that the first tests had been ‘false positives’. Our little Angel was healthy, we were beyond lucky and more than grateful for the prospect of a healthy future together as a family.
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As we went through our journey that very long 10 weeks, we discovered that other people are not so blessed. When Bailey was given the all-clear after our initial feelings of joy, we realized clearly that we must not forget those whose miracles were not granted - and that we were obligated by our blessings to try to help others whose lives are being deeply affected by this family of illnesses.
We realized as well that the living hell we had endured during that short period of time is nothing compared to the families that actually have children with some type of metabolic disorder and the difficulties they face with every day that passes.
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| Within these realizations, came the birth of |
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| Our mission is trifold: |
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To immediately and effectively heighten awareness on the importance of expanded newborn screening and its availability and necessity for every newborn. Through this testing, when a child is diagnosed with a disorder, steps can be taken immediately to mitigate the problems that go along with these diseases;
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To create, promote and facilitate legislation which will mandate this expanded newborn screening for all fifty states; and
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To raise funds through promotional activities and sales to support children and families affected with GA1 and other OA’s (organic acidemia metabolic disorders) through the creation of provisional support programs, including food, vitamin and emotional support efforts. With the costs of all these important areas of treatment so exorbitant, it is imperative that insurance companies supply these families with supplements and support they need to live relatively normal lives.
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A big challenge, and a large task, yes. But with your help, as we work together to accomplish these goals, many lives will be changed and our reward will be in seeing those changes, and knowing that we took one of the most horrifying experiences of our life, and used it to make their lives and experiences much more joyful.
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| That is our hope and vision. We invite you to join us.” |
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To immediately and effectively heighten awareness on the importance of expanded newborn screening and its availability and necessity for every newborn.
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To create, promote and facilitate legislation which will mandate expanded newborn screening for all fifty states.
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To raise funds through promotional activities and sales to support children and families affected with GA1 and other OA’s (organic acidemia metabolic disorders) through the creation of provisional support programs (including food, vitamin and emotional support efforts.)
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10153 ½ Riverside Drive
Suite 473
Toluca Lake, CA 91602
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(310) 401-7363
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Renee' Baio...........President
Megan Norman.........Vice President
Harry Gold......Treasurer
Catherine Soland.......Secretary
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Bailey Baio Angel Foundation
is a 501(c)(3) Non-Profit
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